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Coeliac Disease
01 In Brief
Coeliac disease is a genetically determined autoimmune disorder. It affects people differently, when it presents in childhood it is usually associated with gastrointestinal symptoms. Antibodies are produced against proteins known as gluten contained in wheat (including spelt, tricale,and kamut) rye and barley which then cause damage to the small intestinal lining. It is a lifelong disorder and is treated by a gluten free diet. There are a myriad of resources available on line. We have chosen the pick of the crop.
02 What Others Say
Top Choice
- Sydney Children's Hospital Fact Sheet
Coeliac disease( gluten intolerance )
Next Best
- Shepherd Works: Dr Sue Shepherd is a Melbourne based dietician: her website has comprehensive fact sheets on Coeliac and Gluten free diet. She was diagnosed with coeliac 15 years ago and has first hand experience.
- Comer Children's Hospital University of Chicago Celiac Disease Center
Overview of Celiac Disease
Symptoms of Celiac Disease
Antibody Blood Tests for Celiac Disease
Genetic Testing for Celiac Disease
Diagnosis of Celiac Disease
Treatment for Celiac Disease
Follow-Up Testing for Celiac Disease
Celiac Disease Facts and Figures
- Kids Health: Children, Youth and Womens service South Australia has a fact sheet written for children that is light hearted and age appropriate
- National Digestive Diseases Information Clering house
03 I Want To Know More
The Coeliac Society of Australia website should be your first port of call when a diagnosis is confirmed. Excellent resources including an i-Phone app Ingredient list for $9.99
There are also state based Coelic societies that provide personal information and support to those diagnosed with coeliac and to their families. Services and information about:
- Gluten free diet, ingredients, where to buy gluten free food, recipes and cooking,
- Eating out, overseas travel and research.
- Activities such as information seminars, cooking demonstrations, shopping tours, gluten free food expos and children’s events may be held.
Celkids ; part of the celiac Sprue Association has a great kids section with advice about school camps etc
- Gastro net contains information available about a Gluten free diet
Gluten Free Diet for Coeliac Disease
- US site NASGHAN (North American Society for Pediatric Gastroenterology, Hepatolgu and Nutrition) has link to a Gluten free Diet guide.
- Celiac Disease foundation another US site with great resources and a kids corner
- Celiac.com was stared by Scott Adams in 1995 after he wasdignosed with Celiac disease. Although loaded with ads it is a good resource for gluten free diet and contains a helpful page on safe and unsafe foods and ingredients.
- Prevention of Coeliac disease by early introduction of gluten: probably has no effect
N Engl J Med. 2014 Oct 2;371(14):1304-15. doi: 10.1056/NEJMoa1404172.
Randomized feeding intervention in infants at high risk for celiac disease
04 Clinicians Tools and Resources
Primary Care liason : Education series RCH melbourne: excellent update on celiac disease by DR Tonyy Catto-Smith with an excellent discussion of the role of HLA and antibody screening, Powerpoint slides and oral presentation
Sheperd works a melbourne based Dietetics
The information is not intended to take the place of medical advice.
Please seek advice from a qualified healthcare professional.
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Last updated: 27/01/2011 by Dr Elizabeth Hallam