Coeliac Disease

01 In Brief

Coeliac disease is a genetically determined autoimmune disorder. It affects people differently, when it presents in childhood it is  usually associated with gastrointestinal symptoms. Antibodies are produced against proteins known as gluten contained in wheat (including spelt, tricale,and kamut) rye and barley which then cause damage to the small intestinal lining.  It is a lifelong disorder and is treated by a gluten free diet. There are a myriad of resources available on line. We have chosen the pick of the crop.

02 What Others Say

Top Choice

  • Sydney Children's Hospital  Fact Sheet

Coeliac disease( gluten intolerance )

Next Best

  • Shepherd Works: Dr Sue Shepherd is a  Melbourne based dietician: her website has comprehensive  fact sheets on Coeliac and Gluten free diet. She was diagnosed with coeliac 15 years ago and has first hand experience.

Coeliac Disease

Gluten Free Diet

  • Comer Children's Hospital University of Chicago Celiac Disease Center

Celiac Disease fact sheets 

Overview of Celiac Disease 

Symptoms of Celiac Disease 

Antibody Blood Tests for Celiac Disease 

Genetic Testing for Celiac Disease 

Diagnosis of Celiac Disease 

Treatment for Celiac Disease 

Follow-Up Testing for Celiac Disease 

Celiac Disease Facts and Figures

  • Kids Health: Children, Youth and Womens service South Australia has  a fact sheet written for children that is light hearted and age appropriate

Coeliac disease

  • National Digestive Diseases Information Clering house

Good general fact sheet on Coeliac disease

 

03 I Want To Know More

The Coeliac Society of Australia website should be your first port of call when a diagnosis is confirmed. Excellent resources including an i-Phone app Ingredient list for $9.99

The Coeliac Society

There are also state based Coelic societies that provide personal information and support to those diagnosed with coeliac and to their  families. Services and information about: 

  • Gluten free diet, ingredients, where to buy gluten free food, recipes and cooking, 
  • Eating out, overseas travel and research.
  • Activities such as information seminars, cooking demonstrations, shopping tours, gluten free food expos and children’s events may be held.

Celkids ; part of the celiac Sprue Association has a great kids section with advice about school camps etc

Celkkids Network

  • Gastro net contains  information available about a Gluten free diet

Gluten Free Diet for Coeliac Disease

  • US site NASGHAN (North American Society for Pediatric Gastroenterology, Hepatolgu and Nutrition) has link to a Gluten free Diet guide. 

NASGHAN

  • Celiac Disease foundation another US site with great resources and a kids corner

Celiac Disease Foundation

  • Celiac.com was stared by Scott Adams in 1995 after he wasdignosed with Celiac disease. Although loaded with ads it is a good resource for gluten free diet and contains a helpful page on safe and unsafe  foods and ingredients.

Celiac.com

  • Prevention of Coeliac disease by early introduction of gluten: probably has no effect

N Engl J Med. 2014 Oct 2;371(14):1304-15. doi: 10.1056/NEJMoa1404172.

Randomized feeding intervention in infants at high risk for celiac disease

 

04 Clinicians Tools and Resources

Primary Care liason : Education series RCH melbourne: excellent update on celiac disease by DR Tonyy Catto-Smith with an excellent discussion of the role of HLA and antibody screening, Powerpoint slides  and oral presentation

2010-08 PPP Gastro Coeliac

Sheperd works a melbourne based Dietetics 

Food diary

The information published here has been reviewed by Flourish Paediatrics and represents the available published literature at the time of review.
The information is not intended to take the place of medical advice.
Please seek advice from a qualified healthcare professional.
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Last updated: 27/01/2011 by Dr Elizabeth Hallam